We Want Your Trust
1. Who runs this site?
CFS Squared is part of the b5media blog network, which is a privately owned network of blogs focusing on “passions, personal growth and lifestyles.” I (mom) am a former nurse and am currently an author. I have had CFS for over a dozen years, and now my teenage daughter has it as well. This blog is to document our progress and feelings about having an illness few understand.
2. Who pays for the site?
Thus far, the Network survives from revenue generated by Google ads and other affiliate programs. None of the information here at CFS Squared is bought or sold.
3. What is the purpose of the site?
Going through chronic fatigue syndrome is hard. Very hard. Hard to get a diagnosis, hard to live with day after day, and sometimes hard to smile through. It is a special burden to adolescents - an unfair burden. We hope to bring you the latest news and give you hope where you may feel discouraged and life tips to make each day a little more bearable. We have found a life that CFS can’t touch - we hope you will find the same.
4. Where does the information come from?
I (mom) scan Google News every day to see what news is making the headlines that pertains to chronic fatigue syndrome and fibroymyalgia. I am in contact with the CFIDS Association and believe that through activism and demanding a medical community take responsibility for research and treatment, we will eventually find answers.
5. What is the basis of the information?
Most of our information is from personal experience. The rest comes from other victims and their families. The organizations involved with CFS are something we stay in touch with as well.
6. How is the information selected?
We both try to document and blog what is either relevant in the news, or is a useful life tip that we use. If we find a way to make a daily life event easier to handle, we will share it. If we hear about a new treatment, we will tell you where we found the information and suggest you bring it up with your doctor. We DO NOT recommend any particular treatment or approach - we aren’t your doctor - we are here to remind you that you aren’t alone.
7. How current is the information?
As discussed above, we keep current with the news and research - our dates are clearly posted. We hope most of our content will be relevant at any time because coping is a job that has no “time expiration” date.
8. How does the site choose links to other sites?
We link to sites that provide support and understanding. We also link to the major organizations advocating for CFS patients. We don’t link because someone asked and never if they offer to pay for a link. We want you to find support and coping mechanisms.
We have no influence over the Google ads which are generated automatically by Google based on the content of the blog. I will sometimes show an Amazon.com button for a book I mention in a post for your convenience. I never write anything with the thought of making money in mind.
9. What information about you does the site collect, and why?
CFS Squared never gives, sells or rents your private details to anyone.
10. How does the site manage interactions with visitors?
We love comments. Part of support is creating community and that is what we are all about.
I hope that these answers will increase your trust and confidence in CFS Squared. It would be a great public service if other websites and blogs would answer these questions in a straightforward and honest manner.
Thanks to Genetics and Health for this inspiring idea!
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POSTED IN: CFS Awareness, Chronic Fatigue Syndrome/Fibromyalgia, Mom with CFS, News & Research, Support, Teen with CFS
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